Neil Hilton2013-02-27 02:42:01
The page is completed and set up for everybody to look at. This is a family who are kind to others and deserve our help. Please read and donate if possible.
Me, Neil Hilton and a friend Scott Parkinson are running the Oklahoma Memorial Marathon on April 28th, 2013, to raise money for our friend and fellow coach. The Riley family are a inspiration to all of us, handling such a tough situation so well. Olivia has had a tough start to life with major heart problems but has proved what a little fighter she is already by being so strong and still showing us that cute smile constantly. But unfortunately it hasn't come cheap for the family and we are willing to do all we can to help Tommy and Kellie Riley and baby Olivia in any way we can.
'Baby O' has had the following problems from birth,
Tetralogy of Fallot (TOF) is the most common congenital heart defect causing cyanosis, a bluish discoloration of skin caused by oxygen-poor blood reaching the general circulation. An embryologic failure of the right ventricular outflow tract to form properly results in the 4 cardiac abnormalities characteristic of TOF:
Ventricular Septal Defect (VSD): An abnormal opening between the two lower chambers of the heart
Pulmonic stenosis (PS): A narrowed area within the main pulmonary artery, at, above or below the pulmonary valve
Malpositioned aorta: The entrance to the aorta overrides the VSD
Ventricular hypertrophy: An overly muscular right ventricle
In the normal heart, oxygen-poor blood returns to the right side of the heart where it is pumped to the lungs to be oxygenated. In TOF, the pulmonic stenosis increases the resistance to right ventricular outflow. This can cause elevation of right-sided heart pressures that may result in oxygen-poor blood being diverted across the VSD to the left ventricle and into the aorta (“right-to-left shunt”). When the aorta carries “mixed” blood to the general circulation, less oxygen is available to the tissues and cyanosis can result. Without surgical intervention, most patients with TOF will not survive past early adulthood.
This is an open-heart procedure. The chest is opened via a sternotomy incision through the breastbone, and the patient is connected to a heart-lung bypass machine. Depending on the location of the defect, an incision is made in the right atrium, the pulmonary artery or the outflow tract of the right ventricle. The right atrial approach in which the VSD is patched by working through the open valve (tricuspid valve) between the right atrium and the right ventricle is preferred. This approach prevents having to make an incision in the right ventricle that can lead to future right ventricular failure.
The patch for the VSD is created by the surgeon from either the patient’s pericardial tissue or a synthetic material such as Dacron, then sutured into place to close the defect. Any obstructive tissue in the right ventricular outflow tract is cut away. A second incision is made in the main pulmonary artery to complete the VSD closure and any additional resection of obstructive tissue. Additional work may be needed to widen a narrow pulmonary artery or valve, such as a patch. In some cases of severe obstruction or absence of the pulmonary artery, a conduit may be placed between the right ventricle and pulmonary arteries to provide an open communication for blood to flow to the lungs. After making these repairs, the atrial, pulmonary artery and/or infundibular incisions are closed with sutures, and the operation is completed.
Any donation would be amazing, no matter how small or big it may be. Every dollar will go to the Riley family to help them through a tough time.
We would love your help to raise as much as we can to help the family and the future of such a young life.
Neil HiltonContact me
$500Mike, Amy and Holly Blackwell
2013-09-08From Mike, Amy and Holly Blackwell. Our heartfelt good wishes for baby Olivia. Holly says "She is the cutest baby ever!"
$100Jesse and Kiley Faily
2013-05-06I have known Tommy since I was 12 or 13, Literally is one of the best men I know. I have 19 month old twin girls and couldnt imagine what that must feel like to see your daughter struggling. I will kiss my kids extra long tonight, just as Tom does Olivi
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